• Alternatives to antipsychotic medication: Psychological approaches in managing psychological and behavioural distress in people with dementia
• DCP Briefing Paper No 5 January 2006: Commissioning Clinical Psychology Services for older people, their families and other carers
• Dementia Pathways
• Other briefing papers and reports

• Age UK
• Care Quality Commission

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• Alternatives to antipsychotic medication: Psychological approaches in managing psychological and behavioural distress in people with dementia

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Workstream Lead - Jane Simpson

Any queries are welcome on [email protected]

Recent publications

Mistry, K., & Simpson, J. (2013). Exploring the transitional process from receiving a diagnosis to living with motor neurone disease. Psychology and Health, 28(8), 939–953.

• Access publication

Simpson, J., McMillan, H., & Reeve, D. (2013). Reformulating psychological difficulties in people with Parkinson’s disease: The potential of a social relational approach to disablism. Parkinson’s Disease, 2013.

• Access publication

Maxted, C., Simpson, J., & Weatherhead, S. (2014). An exploration of the experience of Huntington’s disease in family dyads: An interpretative phenomenological analysis. Journal of Genetic Counseling, 23(3), 339–349.

• Access publication

Simpson, J., Lekwuwa, G., & Crawford, T. (2014). Predictors of quality of life in people with Parkinson’s disease: Evidence for both domain specific and general relationships. Disability and Rehabilitation, 36(23), 1964–1970.

• Access publication

Arran, N., Craufurd, D., & Simpson, J. (2014). Illness perceptions, coping styles and psychological distress in adults with Huntington’ s disease. Psychology, Health & Medicine, 19(2), 169–179. 

Simpson, J., & Thomas, C. (2015). Clinical psychology and disability studies: Bridging the disciplinary divide on mental health and disability. Disability and Rehabilitation, 37(14), 1299–1304.

• Access publication

Simpson, J., McMillan, H., Leroi, I., & Murray, C. D. (2015). Experiences of apathy in people with Parkinson’s disease: A qualitative exploration. Disability and Rehabilitation, 37(7), 611–619.

• Access publication

Barcroft, R., Simpson, J., & Butchard, S. (2016). Support for practitioners working with people with neurodegenerative disorders. Psychology of Older People: The FPOP Bulletin, 136, 21–28.

Garlovsky, J. K., Simpson, J., Grünewald, R. A., & Overton, P. G. (2016). Impulse control disorders in Parkinson’s disease: Predominant role of psychological determinants. Psychology & Health, 31(12), 1391–1414.

• Access publication

Barcroft, R., & Simpson, J. (2016). Psychological interventions for depression in people with multiple sclerosis. Psychology of Older People: The FPOP Bulletin, 136, 40–47.

Theed, R., Eccles, F. J. R., & Travers, V. (2016). Anxiety and depression in individuals with Parkinson’s disease: perspectives of the nurse specialist. British Journal of Neuroscience Nursing, 12(3), 132–139. 

Warren, E., Eccles, F., Travers, V., & Simpson, J. (2016). The experience of being diagnosed with Parkinson’s disease. British Journal of Neuroscience Nursing, 12(6), 288–296.

• Access publication

Garlovsky, J. K., Overton, P. G., & Simpson Paul G. (2016). Psychological predictors of anxiety and depression in Parkinson’s disease: A systematic review. Journal of Clinical Psychology, 72(10), 979–998. 

Maltby, J., Dale, M., Underwood, M., & Simpson, J. (2017). Irritability in Huntington’s Disease: Factor Analysis of Snaith’s Irritability Scale. Movement Disorders Clinical Practice, 4(3), 342–348.

• Access publication

Regan, L., Preston, N. J., Eccles, F. J. R., & Simpson, J. (2017). The views of adults with neurodegenerative diseases on end-of-life care: a metasynthesis. Aging & Mental Health, 1–9.

• Access publications

Theed, R., Eccles, F., & Simpson, J. (2017). Experiences of caring for a family member with Parkinson’s disease: a meta-synthesis. Aging & Mental Health, 21(10), 1007–1016.

• Access publication

Regan, L., Preston, N. J., Eccles, F. J. R., & Simpson, J. (2018). The views of adults with Huntington’s disease on assisted dying: A qualitative exploration. Palliative Medicine, 32(4), 708–715.

• Access publication

Zarotti, N., Simpson, J., Fletcher, I., Squitieri, F., & Migliore, S. (2018). Exploring emotion regulation and emotion recognition in people with presymptomatic Huntington’s disease: The role of emotional awareness. Neuropsychologia, 112, 1–9.

• Access publication

Theed, R., Eccles, F. J. R., & Simpson, J. (2018). Understandings of psychological difficulties in people with the Huntington’s disease gene and their expectations of psychological therapy. Psychology and Psychotherapy: Theory, Research and Practice, 91, 216-232.

• Access publication

Simpson, J., Chatzidamianos, G., Perpetuo, L., Fletcher, I., & Eccles, F.J.R. (2018). A new scale measuring adaptive perceived control for people with Parkinson's: initial construction and further validation. Journal of the Neurological Sciences, 391, 77-83

• Access publication

Zarotti, N., Simpson, J., & Fletcher, I. (2019). “I have a feeling I can’t speak to anybody’: A thematic analysis of communication perspectives in people with Huntington’s disease. Chronic Illness, 15, 61-73. 

• Access publicaiton

Zarotti, N., Fletcher, I., & Simpson, J. (2019). New perspectives on emotional processing in people with symptomatic Huntington’s disease: impaired emotion regulation and recognition of emotional body language. Archives of Clinical Neuropsychology, 34, 610-624.

Simpson, J., Theed, R., Dale, M., Gunn, S., Zarotti, N., & Eccles, F.J.R. (2019). A critical scoping review of the concept of irritability in Huntington’s disease. Cortex, 120, 353-374.

Moore, J., Eccles, F.J.R., & Simpson, J. (in press – available online). Post-diagnostic lived experiences of individuals with essential tremor. Disability and Rehabilitation.

• Good Practice Guidelines for UK Clinical Psychology Training Providers for the Training and Consolidation of Clinical Practice in Relation to Older People
• National minimum standards of expected capabilities that trainee clinical psychologists should gain to fit them for work with older people, with guidance on minimum supervised practice and academic teaching